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  • The Other Side of Autism Awareness and Acceptance

    • by Christy

    Autism Unfiltered was born out of a deep desire to make sure that the rhetoric doesn’t drown out those who are advocating every day to make sure our children have full and autonomous lives and are treated with dignity and respect.

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  • ABLE to Save for My Disabled Son

    • by Christy
    Graphic reads: What no one tells you about saving for the future... Navigating the $2,000 asset limit if your child will receive Medicaid and SSI. To the right is a picture of C standing in line at a store. His hands are on a shopping cart and he is wearing a maroon sweatshirt and matching pants.

    In 1989 – the year I was in second grade – the federal government set the asset limit for people receiving SSI at $2,000.

    It has not changed since.

    That means that saving for your disabled child is more complicated than it would be for a child who won’t need SSI or Medicaid benefits in the future…

    Read More

  • Why Planning For Your Disabled Child’s Future Isn’t A “Tomorrow Problem”

    • by Christy
    Graphic Title Reads: What No One Explains About Future Planning: Navigating the complex systems with no one to help coordinate it all. Image of C - an autistic teen, standing in front of a wooden fence with a pond and fall foliage in the background. He is wearing a grey raglan shirt with blue sleeves. He has short brown hair and is wearing sunglasses.

    Future planning for a disabled child is often treated like a “tomorrow problem.” But when families start navigating waivers, benefits, and transition planning, they quickly discover how many disconnected systems they’re expected to understand.

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  • The Hidden Problem With Disability Resources

    • by Christy
    What no on explains after your child's diagnosis: Navigating systems that decide access to education, services, and funding. Image of C standing at the fence of a playground at school. He has short brown hair and is wearing a gray t-shirt and jeans.

    Access to information, resources, and support for families raising neurodivergent children depends on word of mouth, luck, and who happens to be in the room.

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  • When “Support” Feels Like Punishment: 3 Questions To Ask Before Emailing the IEP Team

    • by Christy
    Text on graphic reads: When Punishment is Disguised as Support - you are not overreacting. What to ask before requesting an IEP meeting for your neurodivergent child

    If your neurodivergent child is being removed from peers in the name of “support,” this is how to evaluate the IEP and decide whether it’s time to call a meeting.

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  • Deciding What Is Urgent When Raising A Neurodivergent Child

    • by Christy
    On the left is the Experiential Life Logo, followed by: Caught between making every decision... or... none - because there are too many when you're raising a neurodivergent kid. On the right is an image of Christy (Founder and CEO of Experiential Life) wearing a blue denim button down shirt and her shortish brown hair hanging over her shoulders. She is talking with the camera catching her mid-sentence. Her hands are raised in front of her as if emphasizing a thought.

    From IEPs to medical referrals, decision fatigue is constant. How parents of neurodivergent kids can prioritize without burnout.

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  • When IEP Progress Leads to Reduced Support: What Families Need to Know

    • by Christy
    An autistic 10 year old stands outside with red Mario hat, orange coat, and Toy Story Backpack. He is surrounded by a wooden path and trees with no leaves. The text reads: Progress is not a green light to reduce IEP support for your neurodivergent child.

    The IEP team saw progress, and pulled back dedicated 1:1 support.
    Honestly – it felt like a moment to celebrate.
    Until it wasn’t…
    Because he didn’t have someone dedicated to supporting him…
    When he pulled the fire alarm to get out of an assembly he didn’t want to go to.

    Read More

  • When Survival As A Caregiver Relies On Broken Systems

    • by Christy
    To the right is an image of Christy, with long brown hair, a salmon colored sweater, and black pants kneeling next to her 4 year old autistic son, who is wearing a black hoodie, jeans, and has short black hair. They are standing outside on a paved trail, in the woods, with fallen leaves surrounding them. Text reads: When Survival As a Caregiver Means Relying On Broken Systems.

    Planning for next week feels impossible.
    Planning for adulthood? Out of reach.

    If that sounds like you… lean in for a second.

    You’re doing great.
    You’re not failing your child.
    You’re not behind – you’re overloaded.

    Parenting is hard. Parenting a neurodivergent child in a changing, underfunded, politically volatile system is harder.

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  • What We Gave Up to Feel Safe: Grieving the Loss of Family Tradition

    • by Christy
    What We Gave Up to Feel Safe: Grieving the Loss of Family Traditions While Raising A Neurodivergent Child. To the right is an image of C, my autistic teen, walking over a wooden bridge in the woods. He is wearing a bright blue sweat outfit and is treading across the wooden planks very carefully.

    Every year, as the holiday season kicks off, I find myself grieving the loss of family and friends – not because they’ve passed away – but because our relationship did.

    It’s a particular kind of grief – the kind that doesn’t come with casseroles and sympathy cards.

    It’s the ache of relationships changed, not by death, but by the boundaries we had to draw to protect our child.

    And it’s especially loud this time of year.

    Read More

  • Open Letter to the Mom Running on Peppermint Mocha Lattes and Scotch Tape

    • by Christy

    You can love your child fiercely
    and still feel overwhelmed by the reality of the holiday season with a neurodivergent kid.

    Let’s just call that what it is:
    Being a mom, who makes all the plans, buys all the gifts, and creates all the magic.

    Read More

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Procastinating That Call?

Navigating Care: Essential Questions to Ask Every New Provider

You just got a referral to a new provider. You’re looking at a list of options 10 miles long and you have no idea what to say, how to pick the right provider, and so you toss the list aside for another day. 

Get the “Navigating Care: Essential Questions to Ask Every New Provider” guide delivered right to your inbox. It gives you a template of what to say and ask, so you can feel confident choosing your neurodivergent child’s care team. 

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    Information, Resources, And Community Designed With You In Mind

    Experiential Life is the community for families raising neurodivergent kids. 

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    🧠 Supporting families raising neurodivergent kids
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    🤝 Bringing the experts to you

    Y’all - without context it’s easy to believe that Y’all - without context it’s easy to believe that caregivers are just quitting their jobs and getting paid to do “work they used to do for free.”

But that’s not rooted in reality.

And we should expect @seckennedy_01 to know how Medicaid waiver programs and paid caregiving actually work.

We should expect him to know that the Department of Health and Human Services approved paid caregiving largely due to the aftermath of the pandemic and the Direct Support Professional shortage.

He should be briefed on the number of families that are disenfranchised from traditional 9-5 jobs, because of their caregiving duties.

How we provide billions in unpaid labor.

And when we are paid as caregivers, it in no way matches the hours we put in or the salary we could make if we had infrastructure and invested our tax dollars in programs that allow us to remain employed (if we choose).

At best RFK’s statements are misinformation.

At worst, his words will have dire consequences for families already overwhelmed and barely hanging on.

Video ID: Christy (it’s me) sits at her desk with her coral accent wall in the background. She is wearing glasses and has a sleeveless gray shirt on with ruffles around the collar and her long hair hanging over her shoulders.

Text over reel reads:

Adding context RFK failed to include when he said, “paid caregivers are contributing to Medicaid fraud”
    This is what my work as a healthcare and disabilit This is what my work as a healthcare and disability advocate looks like.

I’m not fighting just for my son - I’m fighting with and beside every disabled person who feels like the attacks on the disability community by this administration are relentless and inhumane.

One day, we’ll look back and celebrate these wins.

What would you add? Share yours in the comments ⬇️

Video ID: C is walking with his back to the camera towards a large beige building. His backpack is swinging in one hand, he is wearing a bright blue hoodie, and a black fedora.

Text reads: 

Things I’ll be saying hallelujah about one day, as a mom to an autistic teen ⬇️
My son’s rights upheld hallelujah
Medicaid protected hallelujah
RFK impeached hallelujah
More than $2,000 in assets hallelujah
No national autism registry hallelujah
Disabled lives valued hallelujah​​​​​​​​​​​​​​​​
    Thank you to @aarp for continuing to do research o Thank you to @aarp for continuing to do research on the caregiver experience. For bringing truth to light - because what this man said under oath is not at all reflective of the caregiver experience. 

And it becomes more obvious, with every syllable that pops out of his mouth, that he is not looking to protect the right for disabled and aging people the ability to live in the community. 

To respect their autonomy and humanity. 

To ensure that all people age with dignity and safety. 

No - sir, you are incorrect. 

Getting paid to provide 24/7 care to aging and disabled loved ones is not fraud.

And I will be damned if your rhetoric prevents my aging parents and disabled child from living in the community and provided care by the person best positioned to do so… me.
    Apparently ADHD gets worse in perimenopause… ask m Apparently ADHD gets worse in perimenopause… ask me how I know 😂

And why is no one talking about it??

Drop a 👋 in the comments if your executive functioning skills suddenly left the room - and your scrambling to pick up the pieces while trying to keep everyone in the house fed and watered.
    I think we need to talk about the autism diagnosis I think we need to talk about the autism diagnosis to cure pipeline more…

Because I thought we were past it - but the rise in the MAHA movement is making me see more and more “autism coaches” selling their cures and promising a “normal” child. 

I got sucked in fast - like almost immediately.

I wanted community and support…

I got sold on “it can be fixed.”

But it came at a price - not just the money they want you to spend, but the price of traumatizing my autistic son and our family, trying to chase unrealistic and not medically responsible solutions. 

When I couldn’t afford what they were selling - I had to seek out a different solution.

And that’s when I found a ton of blogs written by autistic and disabled adults.

Their solutions didn’t cost money - it just required me to change my perspective. 

And that perspective shift changed my life, my career, and how I parent my autistic son. 

It’s exactly why hosting Autism Unfiltered: A Panel Discussion Centering Lived Experience was so important to me personally - and in honor of Autism Awareness and Acceptance Month. 

The discussion is happening live TODAY (April 14th) at 12pm EST. 

But if you missed the live event (because the algorithm is slow to show our content) - you can still catch the replay. 

Just comment “UNFILTERED” and I will send you the details. 

Video ID:

Christy, a white woman (it’s me) is sitting at her desk, looking a hot mess with her hair pulled up in a high pony tail, glasses on, and a fuzzy half zip pink hoodie on. She sits in front of a coral accent wall in her office with a few water color paintings she created hanging on the wall in a horizontal row.
    Here’s the truth about Autism Awareness and Accept Here’s the truth about Autism Awareness and Acceptance Month…

Most of the messaging is about autistic people.

Very little of it is by autistic people.

Almost none of it centers what autistic adults actually want families to know.

That changes April 14th.

We’re sitting down with autistic adults who have different support needs, different identities, and different lived experiences - and we’re asking them the questions families actually need answered.

→ What do you wish your parents had known earlier?
→ What does real support look like - not just in childhood, but across a lifetime?
→ What does acceptance actually mean when the awareness month ends?

And Vincenté - a sibling - is going to talk about what it’s like to grow up alongside a disabled brother and sister and what families often miss about the sibling experience.

Last call to join us live ⤵️

Autism Unfiltered: A Panel Discussion Centering Lived Experience:

🗓️ April 14, 2026 
⏰ 12pm EST
📍 Live on Zoom 
💰 $12.00
👉 Free for Experiential Life members.

Comment “Unfiltered” and I’ll DM you the link to register.

If you can’t make it live, your registration includes the replay.

This is 90 minutes of honest conversation with time at the end for your questions.

**Every dollar we bring in goes directly to offset the amount we promised to pay our panel of speakers.

Because they deserve to be compensated for their time, experience, and expertise.

When you register, you’re not just showing up for yourself. You’re showing up for them.

Video ID: Christy’s feet walking on an asphalt path

Remaining video description in the first pinned comment.
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